Researcher

    Annie Janvier , B.Sc. , M.D. , Ph.D. , FRCPC

    anniejanvier@hotmail.com
    Annie Janvier
    Research Axis
    Fetomaternal and Neonatal Pathologies
    Research Theme
    Bioethics and family study group
    Address
    CHUSJ

    Phone
    514 345-4931 #4685

    Title

    • Associate Professor, Department of Pediatrics, University of Montreal.
    • Neonatologist and Clinical Researcher, Neonatal Intensive Care Unit, CHU Sainte-Justine.
    • Member, Clinical Ethics Unit, CHU Sainte-Justine.
    • Co-director, Microprogram and Master's in Pediatric Clinical Ethics, University of Montreal.

    Education

    • PhD, Biomedical Science, Bioethics option, University of Montreal, 2008.
    • Board Certification, Neonatology, Royal College of Physicians and Surgeons of Canada, 2003.
    • FRCPC, Certification in Pediatrics, Royal College of Physicians and Surgeons of Canada, 2001.
    • Certification in Pediatrics, Collège des médecins du Québec, 2001.
    • Certification in Pediatrics, American Board of Pediatrics, 2000.
    • MD, University of Montreal, 1997.
    • BSc, Biology (Human Genetics), McGill University, 1993.

    Research Interests

    Dr Annie Janvier is a neonatologist, a clinical ethicist and an author working at the University of Montreal, Canada and Hôpital Sainte-Justine. She works first hand with patients and families confronted with difficult decisions such as end-of-life issues, and decision-making in the face of uncertainty.

    At University of Montreal, she is member of the Bureau de L’Ethique Clinique and co-directs the Masters and PhD programs in Clinical Ethics. At Sainte-Justine hospital, she is an active member of the Clinical Ethics Unit and Palliative Care Unit of Sainte-Justine Hospital and is the director of the Research Unit dedicated to Clinical Ethics and “Partnering with Families”.  Her main research interests in bioethics are decision-making for neonates and other incompetent patients with regards to the opinions and attitudes of caregivers and society. She investigates parental perspectives regarding intensive care decisions, death and disability. She has demonstrated many contrasts between provider and parental perspectives and investigates how to optimize communication between clinicians and patients/families. She also examines the positive impacts that follow the integration of “veteran” patients/parents in clinical care, teaching and research. In each of her projects she includes parents as co-investigators. She is author of many narratives, publications and books in clinical ethics and medicine

    Mosts Significants Contributions

    International impact and recognition

    Dr Janvier is a pioneer in empirical research in clinical ethics and in patient engagement. She is an internationally sough speaker who has given more than 200 presentations, often with patients. A well as having a strong national influence, she has been invited all over the world to optimize patient-engagement: Australia, New Zealand, USA, France, Belgium, The UK, Argentina, USA, etc She has catalyzed a culture change in family-engagement. She is sought internationally to be a co-investigator in international clinical trials, where she optimizes participation/consent issues with families, and also investigates patient perspectives.

    Investigations of family-important outcomes and decision-making for critical decisions, such as end of life decisions

    She has investigated the ethics of resuscitation at different stages of life and has demonstrated preconceptions and biases clinicians have; families have different values to providers. She is an international specialist on how to communicate with families in these tragic moments. Below are examples of these publications:

    • Janvier A, Farlow B, Baardsnes J, Pearce R, Barrington KJ. Measuring and communicating meaningful outcomes in neonatology: A family perspective. Semin Perinatol. 2016 Oct 25. pii: S0146-0005(16)30081-7. doi: 10.1053/j.semperi.2016.09.009.
    • Laventhal NT, Spelke MB, Andrews B, Meadow WL, Larkin LK, Janvier A. The Ethics of Resuscitation at Different Stages of Life. Pediatrics. 2011 May; 127(5)e1221-9.
    • Marcello K, Lampron K, Stefano JL, Barrington KJ, Mackley AB, Janvier A. Who’s best interest? The influence of family characteristics on perinatal decision-making. Pediatrics. 2011; 127: e934-9.
    • Janvier A, Meadow W, Leuthner SR, Andrews B, Lagatta J, Bos A, Lane L, Verhagen AA. Whom are We Comforting? An Analysis of Comfort Medications Delivered to Dying Neonates. J Pediatr. 2011; 159: 206-10.
    • Janvier A, Lorenz J, Lantos J. Antenatal Counseling for Parents Facing an Extremely Preterm Birth: Limitations of the Medical Evidence. Acta Paediatr. 2012; 101: 800-4.
    • Janvier A, Barrington KJ, Farlow B. Communication with parents concerning withholding or withdrawing of life sustaining interventions in neonatology. Seminars in Perinatology 38 (2014): 38-46.
    • Gaucher N, Nadeau S, Barbier A, Janvier A, Payot A. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers' Expectations. J Pediatr. 2016 Nov; 178:130-134.e7. doi: 10.1016/j.jpeds.2016.08.006. 
    • Janvier A, Farlow B. The ethics of neonatal research: An ethicist's and a parents' perspective. Semin Fetal Neonatal Med. 2015 Dec ;20(6):436-41. doi: 10.1016/j.siny.2015.10.003.

    Impact on the care of vulnerable children: giving a voice to communities

    Medical policy statements recommending how to take decisions for sick neonates at birth used to have a “futile” category. Unilateral decision-making for comfort care was recommended for preterm infants under 24 weeks (even of some survive with good outcomes) and for other neonates with specific chromosomal anomalies. Dr Janvier’s research, has demonstrated that parents do not agree with experts. They want to be considered in the most important decisions they make in their lives. This rigorous evidence has lead to a change in international guidelines. In many hospitals, preterm infants are no longer defined by their gestational age. Trisomy 13 and 18 are now considered to be “life-limiting conditions” for which shared decision-making with parents is essential. This has saved the lives of many children, optimized the death of others, and improved information/care given to vulnerable parents and bereaved families. Here are examples of the publications from these studies:

    • Janvier A, Farlow B, Barrington KJ. Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18. Am J Med Genet C Semin Med Genet. 2016 Sep;172(3):279-87. doi: 10.1002/ajmg.c.31526.
    • Janvier A, Lantos J, Aschner J, Barrington K, Batton B, Batton D, Berg SF, Carter B, Campbell D, Cohn F, Lyerly AD, Ellsbury D, Fanaroff A, Fanaroff J, Fanaroff K, Gravel S, Haward M, Kutzsche S, Marlow N, Montello M, Maitre N, Morris JT, Paulsen OG, Prentice T, Spitzer AR. Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents. Pediatrics. 2016 Sep;138(3). pii: e20160655. doi: 10.1542/peds.2016-0655.
    • Janvier A, Lantos J - Delivery room practices for extremely preterm infants: the harms of the gestational age label. Arch Dis Child Fetal Neonatal Ed. 2016 Sep;101(5):F375-6. doi: 10.1136/archdischild-2016-310466. Epub 2016 Apr 8.
    • Janvier A, Farlow B, Barrington K. Cardiac surgery for children with trisomies 13 and 18: Where are we now? Semin Perinatol. 2016 Jun;40(4):254-60. doi: 10.1053/j.semperi.2015.12.015. Epub 2016 Feb 1.
    • Janvier A, Barrington KJ, Aziz K, Bancalari E,  Batton D, Bellieni C, Bensouda B, Blanco C, Cheung PY, Cohn F, Daboval T, Davis P, Dempsey E, Dupont-Thibodeau A, Ferretti E, Farlow B, Fontana M, Fortin-Pellerin E, Goldberg A, Hansen TW, Haward M, Kovacs L, Lapointe A, Lantos J, Morley C, Moussa A, Musante G, Nadeau S, O'Donnell CP, Orfali K, Payot A, Ryan CA, Sant'anna G, Saugstad OD, Sayeed S, Stokes TA, Verhagen E. CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions. Paediatr Child Health. 2014 Jan;19(1):22-4.
    • Dupont-Thibodeau A, Barrington KJ, Farlow B, Janvier A. End-of-life decisions for extremely low-gestational-age infants: why simple rules for complicated decisions should be avoided. Semin Perinatol. 2014 Feb;38(1):31-7. doi: 10.1053/j.semperi.2013.07.006
    • Guon J, Wilfond BS, Farlow B, Brazg T, Janvier A. Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18.Am J Med Genet A. 2014 Feb;164A(2):308-18. doi: 10.1002/ajmg.a.36298. Epub 2013 Dec 5.
    • Janvier A, Watkins A. Medical interventions for children with trisomy 13 and trisomy 18: what is the value of a short disabled life?Acta Paediatr. 2013 Dec;102(12):1112-7. doi: 10.1111/apa.12424.
    • Janvier A, Farlow B, Wilfond BS. The experience of families with children with trisomy 13 and 18 in social networks. Pediatrics. 2012 Aug;130(2):293-8. doi: 10.1542/peds.2012-0151. Epub 2012 Jul 23.

    Patient engagement in clinical ethics

    Dr Janvier has partnered with patients to investigate and teach bioethics. She the co-creator and co-director of the clinical ethics unit of CHU Sainte-Justine, where clinicians, researchers and patients optimize and promote ethical and human medicine. At Université de Montréal, she is the co-director of the clinical ethics Masters and PhD Programs, where she coordinates the research done in clinical ethics and patient engagement. She is a member of the BEC (Bureau de l’Éthique Clinique). Dr Janvier co-directs the « Unité de recherche en Éthique clinique et partenariat famille ». With her new program GIVE (GIving Everybody a Voice), all parents/patients who wish will continue being able to optimize research, teaching or clinical care. She has co-edited a book, “Ethique Clinique, un guide pour aborder la pratique”. She believes clinical ethics can be accessible to all, including patients. All the chapters in this book start with a vignette, created/reviewed by patients. She has created the POST group (Parents on the other side of Treatment): active in the academic spheres and optimize communication with families.

    Engagement in the community

    Dr Janvier is present in the patient community (as a cancer survivor and as the mother of a preterm daughter and an adopted son who had complex medical needs). She is active in Préma-Québec, Canadian Premature Baby Foundation and Terre des Hommes, as a physician, an ethicist and a mother. She is a passionate advocate. She is involved in the media and is the spokesperson for vulnerable children and families in the social sphere (radio, television, social media, newspapers). She sits on hospital and governmental committees to optimize the care of children. She has published the book “Respire, bébé, respire!” about her experience as the mother of a sick child, an ethicist and a doctor. This book about parental experiences is now used by providers and families with difficult pregnancies or a sick child.

    Awards and Distinctions

    • Janv 2014, Deuxième place pour le résumé de recherche au 14th International Meeting on Simulation in Healthcare. "Should the Maniquin die during mock codes?", San Francisco, USA 
    • 2012, Prix pour le meilleur projet de recherche et la meilleure présentation à la International Pediatric Palliative care conference (résidente: Marie-Hélène Lizotte), Montréal
    • 2012, Prix pour le meilleur projet de recherche et la meilleure présentation à la Journée de recherche des résidents québécois (résidents: Marie-Hélène Lizotte et Véronique Latraverse), Montréal
    • PhD with great distinction, Dean's Honor List, University of Montreal, 2008.

    Presentations

    • Flipping the Coin Again: The Role of Routine Term Cerebral MRI in Predicting Neurodevelopmental Outcomes of Preterm Infants. Veronique G. Dorval, Annie Janvier, Keith J. Barrington. Symposium par affiches, Society for Pediatric Research, Vancouver, Canada, 4 mai 2010.
    • Clinical Ethics and National Health Policies: A Complex Interaction That Alters NICU Admission. Matteo S. Fontana, Eduard A.A. Verhagen, Eugene M. Dempsey, Olusegun Akinloye, Arend F. Bos, Annie Janvier. Symposium par affiches, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • Optional Lives. Matteo S. Fontana, Eduard A.A. Verhagen, Arend Bos, Annie Janvier. Symposium par affiches, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • Who’s Best Interests? A Multicultural Study of Critically Ill Patients. Annie Janvier, Naomi T. Laventhal, Eugene M. Dempsey, Peter G. Davis, Thor W.R. Hansen, Reidun Forde, Gabriel A. Musante, Maria S. Pignotti, Eduard A.A. Verhagen. Symposium par affiches, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • Ethics, Choices and Decisions in Acute Medicine - A National Survey. Thor W.R. Hansen, Annie Janvier, Olaf Aasland, Reidun Forde. Présentation au podium, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • The Little Prince and His Rose: Comparisons Between Modes of Death in the NICU and the PICU. Matteo S. Fontana, Catherine Farrell, Jacques Lacroix, Annie Janvier. Présentation au podium, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • International Comparison of Triage for Critically Ill Patients: Children First, Adults and Neonates Last. Annie Janvier, Thor W.R. Hansen, Peter G. Davis, Eduard A.A. Verhagen, Naomi T. Laventhal, Gabriel A. Musante, Olaf Aasland, Maria S. Pignotti, Eugene M. Dempsey. Présentation au podium, Society for Pediatric Research, Vancouver, Canada, 3 mai 2010.
    • Exploring the Grey Zone: Variation in Management of Extreme Preterms in 2 Hospitals 4km Apart. Mateo S Fontana, Daniel Faucher, Francine Lefebvre, Keith Barrington, Annie Janvier. Présentation par affiche, Society for Pediatric Research, Vancouver, Canada, 2 mai 2010.
    • Processus décisionnel lors d’une naissance prématurée. Visioconférence médicales du Réseau universitaire mère-enfant, 13 avril 2010.
    • The Best Interests and the Value of Life in Neonatal Resuscitation. Conférencière invitée, Journée de recherche annuelle, Cork Maternity Hospital, Cork, Irlande, 26 février 2010.

    Presentations with the media since 2013

     

    1. Peu de chance de tomber enceinte après 40 ans. http://www.lapresse.ca/actualites/sante/201309/24/01-4692859-peu-de-chances-de-tomber-enceinte-apres-40-ans.php. Sept 25th 2013
    2. Fécondation in vitro : des médecins sonnent l’alarme. http://www.lapresse.ca/actualites/sante/201309/24/01-4692858-fecondation-in-vitro-des-medecins-sonnent-larme.php?utm_categorieinterne=trafficdrivers&utm_contenuinterne=cyberpresse_vous_suggere_4692859_article_POS1. Sept 25th 2013
    3. Intensive care for extremely preterm infants, ethical consideratins. The Current, CBC radio. May 11th 2015
    4. Interview CBC radio, the Current with Anna Maria Tremonti. Medical Advances spur debate on treatment of premature abies. May 11th 2015
    5. Canadian pediatricians recommend letting 22-week-old preemies die. Should doctors try to save the tiny newborns? National Post. Friday May 30thTom Blackwell, May 30th 2015.
    6. Survival of the fittest. Should doctors try to save the tiny newborns? The Gazette Friday May 30thTom Blackwell. May 30th 2015.
    7. Determining the chances of survival; Doctors debate whether to save the tiniest of preemies. Friday May 30thTom Blackwell. May 30th 2015.
    8. Simple choices for complicated decisions: when is too early to save preterm infants? Radio Interview, News Talk 770 with Rob Breakenridge, Calgary, June 1st 2015
    9. When is too early too early? Should doctors try to save tiny newborns? Radio interview. AM980, London, Ontario. The Andew Lawton Show. Monday June 1st 2015.
    10. Banc Public : naître à 25 semaines. Programme télévisé, Télé Québec. Entrevue et aide à la conception. 17 février 2016.
    11. Pénurie de lait maternel dans la banque d’Héma Québec. Entrevue avec Roxane Léouzon pour le Journal Metro. 4 avril  2016
    12. Podcast de: Archives of Disease in Childhood, neonatal and fetal edition. Interview avec Jennifer Thomas pour ADC FN podcast BMJ BMA House, London, 14 octobre 2016.

    Most Important Publications

    Livres

    1. Janvier A. Respire, bébé, respire ! Prématurités et naissances difficiles. Éditions Québec Amérique inc. Octobre 2015
    2. Verhagen, E, Janvier A.  Ethical Dilemmas for Critically Ill Babies. Springer Ed. Octobre       2015
    3. Payot A, Janvier A. Ethique Clinique, un guide pour aborder la pratique. Edition Hôpital Sainte-Justine septembre 2015

    Chapitre de livre

    1. Janvier A, Lantos J. Variations of practice in the care of extremely preterm infants. Chapter 17 in Clinical Ethics in Pediatrics, a Case-Based Textbook, Edited by Douglas Diekema, Mark Mercurio and Mary Adam. Cambridge University Press, 2011, p. 94-101
    2. Janvier A, Payot A. Éthique de la recherche fœtale et néonatale. In Questions d’éthique, la recherche médicale de la naissance à l’âge adulte. Michel Carrier et Danielle Laudy. Edited by : les presses de l’Hôpital Sainte-Justine, 2012, p.107-134
    3. Janvier A, Barrington K, Lantos J. Ethics and Decision Making in Neonatology. In Textbook of Clinical Pediatrics, second Edition. Editors: Elzouki, et al. Springer-Verlag, 2012, p. 441-448
    4. Dupont-Thibodeau A, Janvier A. Relation patient-médecin, In “Éthique Clinique : un guide pour aborder la pratique”. Édition de l’Hôpital Sainte-Justine, septembre 2015, p. 99-106 
    5.  Janvier A, Payot A. Exercices pratiques en éthique clinique, In “Éthique Clinique : un guide pour aborder la pratique”. Édition de l’Hôpital Sainte-Justine, septembre 2015, p.221-234
    6. Dumez V, Janvier A. Collaboration et partenariat patient-équipe soignante, In “Éthique Clinique : un guide pour aborder la pratique”. Édition de l’Hôpital Sainte-Justine, septembre 2015, p.127-136
    7. Tremblay I, Janvier A. Le Principlisme, In “Éthique Clinique: un guide pour aborder la pratique”. Édition de
    8. ​l’Hôpital Sainte-Justine, septembre 2015, p.145-152 
    9. Payot A*, Janvier A. Qu’est-ce que l’éthique clinique ? In “Éthique Clinique : un guide pour aborder la pratique”. Édition de l’Hôpital Sainte-Justine, septembre 2015, p.23-32
    10. Verhagen E, Janvier A. How do babies die and why this is important to clinicians, researchers and parents? In ‘’Ethical dilemmas for critically ill babies’’ Springer -Verlag Editors. November 2015, p. 5-12.
    11. Janvier A, Barrington K, Bellieni C. Neonates are devaluaed compared to older patients, In “Ethical dilemmas for critically ill babies’’ – Springer - Verlag Editors November 2015, p.25-34
    12. Dupont-Thibodeau A, Janvier A. When do we become a person and why should it matter to pediatricians? In “Ethical dilemmas for critically ill babies”, Springer -Verlag Editors. November 2015, p. 13-24
    13. Dupont-Thibodeau A, Janvier A. Who makes it to the NICU? The association between prenatal decisions and neonatal outcomes. In “Ethical dilemmas for critically ill babies”, Springer -Verlag Editors. November 2015, p. 35-42

    Articles publiés depuis 2011 jusqu'à ce jour

    1. Armstrong K, Ryan C, Hawkes C, Janvier A, Dempsey E. Life and death decisions for incompetent patients: determining best interests - the Irish perspective. Acta Paediatr. 2011; 100: 519-23.
    2. Janvier A. Introduction to the personal narratives: learning to improvise. Curr Probl Pediatr Adolesc Health Care. 2011; 41(4):102-3. PMID: 21440224 (Editorial about 10 parent narratives about quality of Life in Pediatrics).
    3. Schrewe B, Janvier A, Barrington KJ*. Life threatening event during skin-to-skin contact in the delivery room. BMJ case reports. 2010; doi:10.1136/bcr.11.2010.3475; Editor’s choice of the week
    4. Debray FG, Morin C, Janvier A, Villeneuve J, Maranda B, Laframboise R, Lacroix J, Decarie JC, Robitaille Y, Lambert M, Robinson BH, Mitchell GA*. LRPPRC mutations cause a phenotypically distinct form of Leigh syndrome with cytochrome c oxidase deficiency. J Med Genet. 2011; 48:183-9
    5. Janvier A. "Pepperoni pizza and sex". Narrative about patients that changed your practice.  Curr Probl Pediatr Adolesc Health Care. 2011; 41: 106-8. Available online:
    6. Karam O, Roy M, Barrington KJ, Janvier A. Long-distance air transport of an infant weighing less than 500g: Is it in the patient’s best interest? Paediatr Child Health, 2011; 16: 79-81.
    7. Janvier A, Meadow W, Leuthner SR, Andrews B, Lagatta J, Bos A, Lane L, Verhagen AA. Whom are We Comforting? An Analysis of Comfort Medications Delivered to Dying Neonates. J Pediatr. 2011; 159: 206-10.
    8. Janvier A, Okah F, Farlow B, Lantos JD. An Infant With Trisomy 18 and a Ventricular Septal Defect. Ethics Rounds, Pediatrics. 2011; 127: 754-9.
    9. Marcello K, Lampron K, Stefano JL, Barrington KJ, Mackley AB, Janvier A. Who’s best interest? The influence of family characteristics on perinatal decision-making. Pediatrics. 2011; 127: e934-9...
    10. Janvier A, Spelke MB, Barrington KJ. The epidemic of multiple gestations and Neonatal Intensive Care use: the cost of irresponsibility. J Pediatr. 2011; 159: 409-13.
    11. Laventhal NT, Spelke MB, Andrews B, Meadow WL, Larkin LK, Janvier A. The Ethics of Resuscitation at Different Stages of Life: A Survey of U.S. Neonatologists and High-Risk Obstetricians. Pediatrics. 2011; 127: e1221-9.
    12. Janvier A, Beaumier L, Barrington KJ. Intestinal Absorption of Lipid Emulsion in Premature Infants: A Pilot Study. Neonatology. 2011; 100:248-52.
    13. Janvier A. "Pepperoni pizza and sex". Narrative about patients that changed your practice. Curr Probl Pediatr Adolesc Health Care. 2011; 41(4):106-8. PMID: 21440226
    14. Hagen EM, Therkelsen OB, Førde R, Aasland O, Janvier A, Hansen TW. Challenges in reconciling best interest and parental exercise of autonomy in pediatric life-or-death situations. J Pediatrics, 2012; 161:146-51.
    15. Janvier A, Lorenz J, Lantos J. Antenatal Counseling for Parents Facing an Extremely Preterm Birth: Limitations of the Medical Evidence. Acta Paediatr. 2012; 101: 800-4.
    16. Janvier A, Farlow B, Wilfond B. The experience of families with children with trisomy 13 and 18 in social networks. Pediatrics 2012; 130: 293-8.
    17. Janvier A, Couture E, Deschenes M, Nadeau S, Barrington K, Lantos J. Healthcare professionals’ attitudes towards termination of pregnancy for different fetal anomalies. Pediatrics and Child Health, 2012; 17: e86-8.
    18. Janvier A, Lantos J, Barrington KJ. The Politics of Probiotics. Acta Paediatrica, 2012 102: 116-8.
    19. Barrington K, Janvier A. The paediatric consequences of Assisted Reproductive Technologies, with special emphasis on multiple pregnancies. Acta Paediatr. 2013; 102: 340-8.
    20. Fontana MS, Farrell C, Gauvin F, Lacroix J, Janvier A*. Modes of death in pediatrics: differences in the ethical approach between neonatal and pediatric patients. J Pediatr. 2013; 162:1107-11.
    21. Janvier A, Shah P. The Premature Lottery in the Canadian Grey Zones. Current Pediatric Reviews. 2013;9: No.1
    22. Hansen TWR, Janvier A, Aasland O, Førde R. Ethics, choices, and decisions in acute medicine - a national survey of physicians’ attitudes. Critical Care Pediatrics, 2013;14: e63
    23. Janvier A, Leuthner SR. Chronic patients, burdensome interventions and the Vietnam analogy. Acta Paediatrica, 2013;102: 669-70.
    24. Janvier A, Mercurio MR. Saving vs Creating: perceptions of intensive care at different ages and the potential for injustice. Journal of Perinatology 2013; 33: 333-5.
    25. Fortin-Pellerin E, Peterson C, Lefebvre F, Barrington KJ, Janvier A. Evolving neonatal steroid prescription habits and patient’s outcomes. Acta Paediatrica, 2013; 102: 799-804.
    26. Janvier A, Watkins A. Medical interventions for children with trisomy 13 and 18: what is the value of a short disabled life? Acta Paediatr, 2013 ; 102(12) :1112-7.
    27. Verhagen AA, Janvier A. The continuing importance of how neonates die. JAMA Pediatr. 2013 Nov; 167(11):987-8.
    28. Guon J, Wilfond B, Farlow B, Brazg T, Janvier A. Our children are not a diagnosis: The experience of parents who continue their pregnancy after a prenatal diagnosis of Trisomy 13 or 18. Am J Med Genet A. 2014 Feb; 164A (2):308-18.
    29. Janvier A, K Barrington, Aziz K et al. CPS policy statement for prenatal counselling before a premature birth: Simple rules for complicated decisions. Pediatrics and Child Health, Vol 19, No 1, January 2014:22-24.
    30. Dupont-Thibodeau A, Barrington KJ, Farlow B, Janvier A. End of life decisions for extremely low gestational age infants: Why simple rules for complicated decisions should be avoided. Seminars in Perinatology 38 (2014): 31-7.
    31. Janvier A, Malo J, Barrington KJ. Cohort study of probiotics in a North American neonatal intensive care unit. J Pediatrics, 2014 May; 164(5):980-5.
    32. Janvier A, Barrington KJ, Farlow B. Communication with parents concerning withholding or withdrawing of life sustaining interventions in neonatology. Seminars in Perinatology 38 (2014): 38-46.
    33. Racine E, Bell E, Yan A, Andrew Bell L, Clarke M, Dubljevic V, Goldowitz D, Janvier A, McLachlan K, Muhajarine N, Nicholas D, PhD, Oskoui M, Rasmussen C, Rasmussen LA, Roberts W, Shevell M, Wade L, Yager JY. Ethical challenges of transition from pediatric to adult health care services for young adults with neurodevelopmental disabilities. Paediatrics and Child Health, 2014, Vol 19(2): 65-8.
    34. Mills BA, Janvier A, Argus BM, Davis PG, Frøisland DH. Attitudes of Australian neonatologists to resuscitation of extremely preterm infants. J Paediatr Child Health. 2015 Mar 9. 2015 Sep; 51(9):870-4. doi: 10.1111/jpc.12862.
    35. Janvier A, Lantos J. Ethics and etiquette in neonatal intensive care-reply. JAMA Pediatr. 2015 Feb; 169(2):190-1. doi: 10.1001/jamapediatrics.2014.2961.
    36. Haward MF, Janvier A. An introduction to behavioural decision-making theories for paediatricians. Acta Paediatr. 2015 Apr;104(4):340-5. doi: 10.1111/apa.12948.
    37. Salmeen K, Janvier A, Sayeed SA, Drey EA, Lantos J, Partridge JC. Perspectives on anticipated quality-of-life and recommendations for neonatal intensive care: a survey of neonatal providers. J Matern Fetal Neonatal Med. 2014 Sep 18: 28(12): 1461-6.doi:10.3109/14767058.2014.957668.
    38. Janvier A, Lantos J; POST Investigators. Ethics and etiquette in neonatal intensive care. JAMA Pediatr. 2014 Sep;168(9):857-8. doi: 10.1001/jamapediatrics.2014.527.
    39. Dupont-Thibodeau A, Langevin R, Janvier A. Later rather than sooner: the impact of clinical management on timing and modes of death in the last decade. Acta Paediatr. 2014 Nov; 103(11):1148-52. doi: 10.1111/apa.12747.
    40. Koper JF, Bos A, Janvier A, Verhagen AAE. Jan F. Dutch neonatologists have adopted a more interventionist approach to neonatal care. Acta Paediatr. 2015 Sep ;104(9)888-93. Doi : 10.1111/apa13050.
    41. Lizotte MH, Latraverse V, Moussa A, Lachance C, Barrington K, Janvier A. Trainee Perspectives on Manikin Death During Mock codes. Pediatrics. 2015 Jul; 136(1):e93-8. Doi. 10.1542/peds.2014-3910.
    42. Wingate JR, Adachi I, Fenton K, Janvier A, Farlow B, Mossad EB. Case-14—2014: Tetralogy of Fallot with severe cyanosis in an infant with trisomy 18: ethical dilemmas in the perioperative period. J Cardiothorac Vasc Anesth. 2014 Dec; 28(6):1677-85. Doi: 10.1053/j.jvca.2014.04.004. Erratum in: J Cardiothorac Vasc Anesth. 2015 Aug; 29(4): e38.
    43. Tremblay I, Van Vliet G, Gonthier M, Janvier A. Partnering with parents to disclose Klinefelter syndrome to their child. Acta paediatr. 2016 May; 105(5):456-61. doi: 10.1111/apa.13301.
    44. Janvier A, Farlow B. The ethics of neonatal research: An ethicist’s and a parents’ perspective. Semin Fetal Neonatal Med. 2015 Dec; 20(6):436-41. Doi: 10.1016/j.siny.2015.10.003.
    45. Prentice T, Janvier A, Gillam L, Davis PG. Moral distress within neonatal and paediatric intensive care units: a systematic review. Arch Dis Child. 2016 Aug;101(8):701-8. doi: 10.1136/archdischild-2015-309410.
    46. Janvier A, Farlow B, Barrington K. Cardiac surgery for children with trisomies 13 and 18: Where are we now? Semin Perinatol. 2016 Jun; 40(4):254-60. doi: 10.1053/j.semperi.2015.12.015.
    47. Lapointe M, Barrington KJ, Savaria M, Janvier A. Preventing postnatal growth restriction in infants with birthweight less than 1300 g. Acta Paediatr. 2016 Feb; 105(2): e54-9. Doi: 10.1111/apa.13237. Epub 2015 Dec 4.
    48. Barrington KJ, Assaad MA, Janvier A. The Lacuna Trial: a double-blind randomized controlled pilot trial of lactoferrin supplementation in the very preterm infant. J Perinatol. 2016 Aug;36(8):666-9. doi: 10.1038/jp.2016.24.
    49. Janvier A, Lantos J. Delivery room practices for extremely preterm infants: the harms of the gestational age   label. Arch Dis Child Fetal Neonatal Ed. 2016 Sep;101(5): F375-6. doi: 10.1136/archdischild-2016-310466.
    50. Janvier A. Tattoos, beer and bowties: the limits of professionalism in medicine.  JAMA Pediatrics, Published Online: June 6, 2016. doi:10.1001/jamapediatrics.2016.0539.
    51. Janvier A, Lantos J, Aschner J, Barrington K, Batton B, Batton D, Berg SF, Carter B, Campbell D, Cohn F, Lyerly AD, Ellsbury D, Fanaroff A, Fanaroff J, Fanaroff K, Gravel S, Haward M, Kutzsche S, Marlow N, Montello M, Maitre N, Morris JT, Paulsen OG, Prentice T, Spitzer AR. Stronger and more vulnerable: The impact of the NICU experience on parents. Pediatrics. 2016 Sep;138(3). pii: e20160655. doi: 10.1542/peds.2016-0655.
    52. Janvier A, Farlow B, Barrington KJ. Parental hopes, interventions, and survival of      neonates with trisomy 13 and trisomy 18. Am J Med Genet C Semin Med Genet. 2016 Sep;172(3):279-87. doi: 10.1002/ajmg.c.31526.
    53. Gaucher N, Nadeau S, Barbier A, Janvier A, Payot A. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers' Expectations. J Pediatr. 2016 Sep 2. pii: S0022-3476(16)30663-1. doi: 10.1016/j.jpeds.2016.08.006.
    54. Laventhal N*, Verhagen EAA, Hansen TWR, Dempsey E, Davis PG, Musante GA, Wiles A, Meadow W, Janvier A. International Variations in Application of the Best Interest Standard Across the Age Spectrum. The Journal of Perinatology. 2016 Oct 13.  doi: 10.1038/jp.2016.168. [Epub ahead of print]
    55. Janvier A, Farlow B, Baardsnes J, Pearce R, Barrington KJ. Measuring and communicating meaningful outcomes in neonatology: A parental/family perspective. Seminars in Perinatology 2016 Oct 25. pii: S0146-0005(16)30081-7. doi: 10.1053/j.semperi.2016.09.009. [Epub ahead of print]

    Articles acceptés

     

    1. Pennaforte T, Moussa A, Janvier A. Parler de la vie et de la mort en néonatologie : comment optimiser la communication avec les parents ? Archives de Pédiatrie accepté le 14 novembre 2016

    Autres publications

    1. “Mémoire” on the ethics and reimbursement et regulation regarding the Quebec Reproductive Technology programme written and presented to the Quebec governement on behalf of the APQ (Association des Pédiatres du Québec) and the SNQ (Société de Néonatologiste du Québec). June 2013
    2. “Mémoire” on the ethics of assisted reproduction technology and their reimbursement written with Marie-Hélène Parizeau on behalf of the CEST (Commission d’éthique science et Technologie) and presented to the Quebec government. May 2013
    3. Quebec Stops Multiple Births by funding IVF. Creating families, Canadian magazine of reproductive health, 2011;7:38-43
    4. Moyens de pression des pharmaciens - Inacceptable prise en otage des plus démunis. Letter about pressure tactics of pharmacists association to not cover the costs medication for refugees in Quebec. Feb 2011

    Éditoriaux

     

    1. Janvier A. Introduction to the personal narratives: learning to improvise. Curr Probl Pediatr Adolesc Health Care. 2011 Apr;41(4):102-3. PMID: 21440224 (Editorial about 10 parent narratives about quality of Life in Pediatrics).
    2. Janvier A, Farlow B, Verhagen E, Barrington K. End of life decisions for fragile neonates: navigating between opinion and evidence based medicine. Archives of Disease in Childhood accepté le 29 août 2016

    Lettre à l’éditeur

    1. Janvier A. Raising money for cystic fibrosis: At what price? CMAJ. 2010 Jul 13;182(10):1079. PMID: 20624880.
    2. The OHRP and SUPPORT. Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R Jr, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S. N Engl J Med. 2013 Jun 20;368(25):e36. PMID: 23738513.
    3. Verhagen AA, Janvier A. Survival at a gestational age of 24 weeks in the Netherlands-reply. JAMA Pediatr, 2014 Jun 1; 168(6):582-3. PMID: 24886800.
    4.  Janvier A, Lantos J. Ethics and etiquette in neonatal intensive care—reply. JAMA Pediatr. 2015 Feb;169(2):190-1. doi: 10.1001/jamapediatrics.2014.2961. PMID: 25642903.
    5. Barrington KJ, Janvier A. Reply: To PMID 24411521. J Pediatr. 2015 Feb; 166(2):502-3. doi: 10.1016/j.jpeds.2014.10.063. PMID: 25620518.

    Commentaires

     

    1. Janvier A, Barrington KJ. What is an Appropriate Code?  Am J Bioeth. 2011;11:18-20
    2. Janvier A, Barrington KJ. Genomic Hybridization Technology in neonatology: A Differing View. Paediatr Child health, 2011;16:430.
    3. Janvier A, Barrington KJ. Trying to predict the future of ex-preterm infants: who benefits from a brain MRI at term? Acta Paediatr. 2012 Jul 17. PMID: 22826570.
    4. Janvier A. In support of SUPPORT: mediocrity and mistrust can harm families. Am J Bioeth 2013; 13: 43-4.
    5. Janvier A, Farlow B. Arrogance-based Medicine: Guidelines Regarding Genetic Testing in Children. American Journal of Bioethics. 2014 Mar; 14(3):15-16.

     

    Liste complète des publications récentes.

About this page
Edited by Hoffmann Maude

Created on 9/18/2014
Alert or send a suggestion

Every dollar counts!

Thank you for your generosity.

It's people like you that allow us to accelerate research and heal more children better every year and, as such, offer among the best healthcare in the world.

It's also possible to give by mail or by calling toll-free

1-888-235-DONS (3667)

Contact Us

514 345-4931

Légal

© 2006-2014 CHU Sainte-Justine.
All rights reserved.
Terms of Use, Confidentiality, Security

Avertissement

Les informations contenues dans le site « CHU Sainte-Justine » ne doivent pas être utilisées comme un substitut aux conseils d’un médecin dûment qualifié et autorisé ou d’un autre professionnel de la santé. Les informations fournies ici le sont à des fins exclusivement éducatives et informatives.

Consultez votre médecin si vous croyez être malade ou composez le 911 pour toute urgence médicale.

CHU Sainte-Justine